Associated member of GSISH

Contact Details

Institut für Medizinische Statistik und Epidemiologie
Lehrstuhl für Medizinische Informatik
Klinikum Rechts der Isar
TU München
Bau 523 (2. Stock, Raum: 23 2.7)
Ismaninger Str. 22
81675 München
Germany

Phone: +49 (0)89.4140.4345
Fax:     +49 (0)89.4140.4850

E-Mail: Ronald.lautenschlaeger@tum.de

Project Details

Project:
Pseudonymity in Translational Research

Supervisors:
Prof. Dr. Klaus A. Kuhn
Prof. Dr. Claudia Eckert

Start of PhD-work at GSISH:
March 2009

Project Description:
The principal goal of the project is to establish a network of clinical centres in order to advance collaborative work among researchers which are mostly medical and/or biomedical experts trying to improve health care for patients. Steps to achieve this are: i) Setup of a web-based register, which is adherent to international laws and regulations concerning health care and medical research data; ii) Comprehensive management of data resulting from patient examinations, biological materials including DNA, RNA etc.; iii) Enhancing the collaborative work in research networks by simplifying and accelerating exchange of research results according to privacy laws and regulations; iv) Developing and advancing of a research platform which is built upon highest security requirements for a secure management of sensitive patient data.

Publications:

B. Büchner, C. Gallenmüller, R. Lautenschläger, K. Kuhn, I. Wittig, L. Schöls, D. Rapaport, D. Seelow, P. Freisinger, H. Prokisch, W. Sperl, T. Wenz, C. Behl, M. Deschauer, C. Kornblum, P. Schneiderat, A. Abicht, M. Schuelke, T. Meitinger, Prof. Dr. T. Klopstock,
"Das Deutsche Netzwerk für mitochondriale Erkrankungen (mitoNET)," Medizinische Genetik. September 2012, Volume 24, Issue 3, pp 193-199.

Kalman B Md Dsc, Lautenschlaeger R, Kohlmayer F, Büchner B Md, Kmiec T Md, Klopstock T Md, Kuhn K Md Msc
"An international registry for neurodegeneration with brain iron accumulation,"
Orphanet J Rare Dis. 2012 Sep 17;7(1):66.

F. Kohlmayer, R.R. Lautenschläger, S.H.R. Wurst, T. Klopstock, H. Prokisch, T. Meitinger, C. Eckert, and K.A. Kuhn
"Konzept für ein deutschlandweites Krank-heitsnetz am Beispiel von mitoREGISTER," GI Jahrestagung (2), 2010, pp. 746-751.